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What's The Good Word?

Thought Leadership

As part of our mission, to raise awareness and education for celiac disease, we've been able to connect with some of the leaders and influencers pioneering celiac disease research and awareness globally.

Dr. Green, one of the few recognized experts on celiac disease in the United States, spoke with us about the Center, his experience and tenure with studying the Disease, and breaking misconceptions on what it truly means to be "Gluten Free." 

Dr. Green, one of the few recognized experts on celiac disease in the United States, spoke with us about the Center, his experience and tenure with studying the Disease, and breaking misconceptions on what it truly means to be "Gluten Free." 

Disease-Related Questions

Can you speak to the differences between being gluten intolerant, and having Celiac Disease?

  • Its’ not black or white. The bulk of people who claim to have gluten sensitivity are self-diagnosed, usually. Studies show there’s type of damage in some people, but when you take self-identified gluten sensitive people only 20% have gluten sensitivities. 

  • We think it does exist, however, it’s not as common as people think. One benefit that has resulted from a heightened awareness of gluten sensitivity is an increased rate of diagnosis for celiac disease.  

 

What happens to the body, if diagnosed with Celiac Disease, and you do not follow a gluten-free diet?

  • If you ingest gluten when diagnosed with celiac disease, a patient may experience inflammation and subsequent intestinal damage. Reactions vary by patient, however, some people get sick, others have headaches. 

  • If someone with celiac disease omits the gluten from their diet – these symptoms and damages will go away. If someone with Celiac repeatedly cheats on following a gluten-free diet – there’s an increased risk of developing lymphoma and other autoimmune conditions. 

 

What are common misconceptions that you see and hear about Celiac Disease?

  • Many times, people think that being gluten free is “healthier.” A common misconception, indeed! Specifically, many commercially manufactured products like bars and foods that contain specific additives like – salt, sugar, fat and gluten. However, if you take one of these additives for ‘taste’ out, food manufacturers dial-up the other ingredients (such as fat, salt, and sugar) to increase flavor and taste. Often, you’ll find that products are labeled as “gluten-free,” they have higher cholesterol and do not equate to being traditionally healthier alternatives. 

 

What is the official number, of patients now that have Celiac Disease?
I think it was last 1 in 10? 

  • Approximately, 1% of the population has the disease, globally. A few years ago, 20% of that 1% were diagnosed with celiac. Because of the research, medical professionals have helped to increase awareness, and as a byproduct - the rate of diagnosis has increased significantly. About 60% of the 1% are diagnosed. 

 

How has it changed over time?

  • Celiac disease has evolved over the last few years, in that its more frequently diagnosed now. And, diagnosis is not solely dependent upon having gastrointestinal issues as a sign or symptom. In particular, we are understanding that celiac disease is being recognized through dental enamel defects, infertility, as some of the other triggers for indicating signs of diagnosis. 

  • What’s happened – is that there’s this concept of gluten being bad for everyone – the GF diet has been adopted by those who have not had celiac disease. We’ve been looking at these people and looked at research on those people.

  • We don’t think that a GF diet is all that healthy for those non-Celiac. This should be followed by a dietician – knowing what to avoid, but knowing what to eat – which is harder. From a medical perspective, we would advocate that someone should see a dietician on a regular basis with celiac disease. However, if people are electively choosing to be GF they should know that it lacks fiber, iron and B vitamins. Those on a gluten-free diet frequently have increased levels of heavy metals. In addition, those that elect to restrict gluten frequently avoid other foods such as dairy, soy and corn. A restricted diet is not healthy. A gluten-free diet is frequently low in whole grains that are very "heart healthy.” One should know the pitfalls associated with following this diet electively. 

Professional-Career-Related Questions

Tell me a bit more about what you’ve done in your field, how did you first get into Celiac Disease treatment and research?

  • Dr. Peter Green was trained in Australia, and initially came to the US to do research, with plans to return to Australia. However, his plans quickly changed when he followed his mentor and then Chief GI Doctor at Columbia – to stay on, and learn about the small intestine. 

Celiac Disease Center at Columbia University

Tell me a little bit about the Celiac Disease Center at Columbia University in New York.

  • I hold a penchant for doing research, and found that very few others globally were conducting research on celiac disease – especially in the US. There’s currently not much funding from the government for celiac disease and subsequent celiac disease research – as such, the celiac Disease Center works from private donations to help fund the research for the organization – to ultimately provide a better way of life for those affected by celiac. The research, for the current staff of GI doctors at the center is an academic pursuit – as none of the doctors have celiac disease themselves. It is mainly patients and their families that help to support this type of research. It’s only through research that advances in medicine can occur for those affected by the disease. 

 

What is the research your teams are doing focused on conducting?

  • At the Center, the research our teams are conducting focuses on the quality of people’s lives and their health, as it pertains to when they are on a Gluten-Free diet. Our research looks to understand why people have celiac disease, because its largely unknown. Roughly 40% of the population have the gene for celiac disease, and we know it can be genetic, but only 1% of the population gets celiac disease. Our teams are looking at the immunology and epidemiology of celiac. It is only through studying this research can we learn how to prevent it from occurring in the future. 

  • There could be an added genetic influence in some families, specifically we’ve noted that only 10% of people with celiac disease have another family member with celiac disease! 

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